Following
our missed miscarriage at 12 and a half weeks .We
thought that there would be a bit of a waiting time for us to get started on
our IVF
treatment. We knew we had been at the top of the waiting list as our scheduled appointment
to start had actually come round just before our first pregnancy scan. But
seeing as we had already served our waiting list time luckily that meant we
didn’t have to wait at all.Looking
back I’m not sure whether this was a good or bad thing. There wasn’t long to
dwell on losing the baby, but I’m still not sure if my body was physically
ready.
However we had come this far and we didn’t take too much time to hum and haw
and just decided to go for it. Funnily enough our IVF treatment then started on
a morning that we were already signed up to be attending an IVF conference held
in Glasgow. All through the IUI treatments we just thought it would work and
that we wouldn’t find ourselves in this position, so we naively just hadn’t
given the process much thought. It was a surreal morning listening to
specialist after specialist, and we felt overwhelmed with some of the options that
might lie ahead for us, but I am so glad we had gone just to get a proper
overview before it kicked off. I was out of the conference and back in the
hospital waiting room within an hour just waiting to pick up my injections to
start that day. It had only been 5 weeks since my operation post baby and I
didn’t click that it had been such a small amount of time. It was a proper
whirl-wind but we were so excited and hopeful to try and get back on track that
I never really took it all in. It is funny in the infertility cycle you can get
a bit lost in tunnel vision of the situation and sometimes you don’t take a
moment to work out how you might feel or what might be best for you.
As
I have said before getting the drug doses right for IUI treatment is a bit of a
minefield. You are trying to encourage the body to create follicles in order
for an egg to be released by taking a special injection. But if you have more
than a few follicles of a certain size the IUI treatment is cancelled as they
can’t risk multiple eggs being released and creating multiple pregnancies which
are technically riskier.
With
IVF on the other hand it was a new challenge. This time they are looking for
you to make lots of follicles as you want to produce as many eggs for
harvesting (that phrase… shudder) as you can as these are then used to
fertilise/ and or for freezing for later use. However you need to balance it
right as you don’t want the body to over produce follicles which is a risk that
can make people really unwell (OHSS).
As I had a high ovarian
reserve this was something I was at
risk off, so it is a real balancing act to contend with. The ideal situation is
to respond well and have a nice group of healthy eggs removed and a good number
making it past day 5 in the lab ( this is when they become blastocysts) and
then any not placed back in the womb are frozen. For one cycle of IVF you have
that initial collection and then if any are frozen and the first transfer
fails, you can have those frozen embryos placed back later and that all just
counts as one full IVF cycle. So essentially you can have a few goes in just
one cycle if your collection goes well.
Ally sitting waiting before I get wheeled off for egg collection |
I responded to the meds as expected, especially
as for this round I was given 3 times the dose I had been having previously so
before I knew it, my big bloated and swollen body was booked in to have the
eggs collected. It really was quite surreal to be at this point so quickly but we felt positive
and had no reason not to. I was back on a theatre table waiting for the
anaesthetic to kick in but this time it was hopefully for a happier reason than
a few weeks back. It didn’t go quite
as expected however and it was crushing to come round from the procedure and have the
lovely Dr tell us she had tried really hard but there were only two eggs in
there. Essentially science only takes us so far and where there should be eggs,
there wasn’t. I felt super disappointed and did blame myself for not taking a
longer break from all the treatment, although they assured me it wouldn’t have
changed anything. As everyone in fertility will always tell you, “it only takes
one” but you don’t feel that way in those moments. Not at all. We only had 2
little eggs and my knowledge of drop-out rates etc meant I knew that was
terrible news. We had an agonising 24 hour wait for the lab to call the next
day and tell us if either had fertilized or had then survived overnight in one
piece.
I
felt sick and deflated and suddenly the grief of everything was an incredibly
intense wave that I just wasn’t expecting. I didn’t want to give up on the hope
that the process could still work but it was so hard to feel anything positive
towards what had happened. I was signed off work for the day to recover, and
just sat waiting for my phone to ring, I swear I burned a hole in that thing
just willing it to make a noise. We got the call
and luckily one of my eggs had been of use and had successfully fertilised overnight. We were not in the clear though as you now have to will them to survive to day
three when it would be placed back inside me. Ideally you want it placed back
in the womb on day 5 which is when it has formed into a blastocyst, but when
there is only 1 or 2 they don’t take that risk and place them back in early .I
was booked in for the transfer and just told we had to wait it out. It was so
hard, I was still trying to not give up on our one growing embryo (or embaby as
they call it in the trying to conceive world!) but it was hard not to.
Getting excited as we head in for our IVF transfer |
But
once again this is where science only takes you so far. After an embryo is
transferred it is up to fate whether or not it chooses to implant, or then
continues to stick once it has implanted. This was by far the worst two week
wait of them all, we had been here SO many times now, I was truly fed up. As
always I found I spent the first 4 days on a little high as the possibility of
it working is there, but something about the passing of time would always then
have me doubting and questioning if we were destined for a different life (something
we have explored various times).
Sadly It
was not to be for us this time, and the arrival of bleeding summoned the end of
the hope that the little embryo had chosen to stay with us. And we both hurt so
much; you couldn’t help it as we were rooting for that one surviving little
ball of cells so badly.
The
Doctors explained that they were also disappointed with how it had gone and
admitted they were probably a bit shy with the drugs on this occasion and
clearly they needed upped next time. But for now it was difficult to imagine
undertaking our last NHS chance to make it work. That pressure of knowing you
have a set number of attempts (no matter how lucky I feel to have those
attempts) is really crushing. And we knew we needed to decide if we wanted a
break to try and recover or to just push on to what felt like the end to a
pretty horrendous chapter. There is so much to consider on the infertility
journey and we just didn’t think we would end up where we had done.
Infertility is really hard and unless you have been through it no-one can actually know what it really feels like. I am so sorry that your iui &ivf cycles haven't worked for you so far but you are very lucky if it works on the first attempt. I am finally pregnant after 13 years of trying & 6 fresh ivf cycles, it has been both emotionally and financially draining.
ReplyDeleteWe got 3 nhs attempts in Aberdeen, self funded one there then changed to GCRM in Glasgow who are fantastic. An 8 hour round trip for appointments, egg collections and transfers isn't fun but totally worth it. I am hoping that your next post brings good news but if not then I would totally recommend them :) xx
Denise | The Life of Dee
Thank you so much for posting Dee! the postcode lottery of it all fascinates me, they have only just granted 3 nhs cycles here ( not for us). So glad that after all those efforts which i applaud you for hugely, that you have had success and are on the road you want to be. That is bloody wonderful news and I am so glad all those trips made it worth while. Cant wait to see more posts as you go along, your blog is so gorgeous! thanks for commenting xx
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